Sorry it's been so long since my last post but I wanted to share an update. I had my vestibulectomy in January of 2012 and I have some good news :) I am consistently over 98% cured!!
I was still struggling with inconsistent painful sex... great sometimes and not so great others until this past September but now I don't remember the last time I had any pain.
Things I think contributed...
I got a mirena IUD in November and I was so worried about any sort of hormonal birth control because I think that may have been part of what caused this entire problem to begin with. But anyway, the mirena IUD greatly improved my vestibulitis.
Mirena has only progestin and no estrogen so that may be why it worked for me better than traditional birth control pills.
I think partly because I was able to have more spontaneous sex without the restrictions of putting on a condom. I also think everything stays more lubricated without the friction of latex. Highly recommended!
I haven't needed lidocaine or anything else topical in over 8 months.
The problem... while checking my strings a few weeks ago I felt something plastic and it was the end of my IUD starting to come out. I had to get it removed and I tried to have another one inserted but I cramped so bad during insertion that I pushed that IUD out too less than 30 seconds after she inserted it... I decided to give my body a break because obviously my uterus was not having it!
So now, no IUD :( But I am thinking of getting one again in a few months. Before the IUD I had really bad, crampy periods and with my mirena much better periods with virtually no cramps!
Other things that may or may not have contributed to my success...
I have been seeing a massage therapist once a month which has been fabulous! I had a back injury 5 years ago and never had it looked at because it didn't really hurt. I realize now that it has had some lasting effects from me favoring one side of my back over the other and now I'm a little crooked and my muscles are super spazzy.
Seeing a massage person has helped me relax my muscles and that has likely affected my entire pelvic floor.
Another thing, I've been gluten free for a year now and I know cutting out gluten can help a lot with reducing inflammation. I saw a doctor who did an allergy test and I was reacting to a lot of different things which just showed me that my stomach and digestive system was kind of a mess.
Going gluten free was so hard at first but now I have more energy and I feel my stomach has chilled out. This could definitely have been affecting my vestibulitis but if it did, it took a long time to really make a difference. Like I said, I haven't eaten it (at all) in a year and I started feeling better (down there) 8 months after my new diet.
Sorry for any spelling errors... I get these posts out quickly and don't really re-read. Hope this helps!
Showing posts with label vulvar vestibulitis. Show all posts
Showing posts with label vulvar vestibulitis. Show all posts
Wednesday, May 14, 2014
Vestibulitis Update: 2+ Years Since My Vestibulectomy
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Tuesday, September 4, 2012
I CAN FINALLY ENJOY SEX! 8 months post vulvar vestibulectomy update surgery
Just another update... and a good one at that :)
I'm feeling really confident that my vestibulodynia is is 98% gone!!! This is big news since I have been suffering with this for over 4 years... since I was 17! I have no idea what caused it because I experienced pain ever since my first sexual experience. It could have been birth control, it could have been excessive nerve endings, it could have been an injury... Actually after thinking about this a lot I realized there is a good chance it could have been the result of an injury I had the summer before I started having sex. I slipped and fell on my right hip and fractured a lower vertebrae. I didn't find out about this until 3 years later when I finally got an xray at the chiropractor because I didn't feel any unusual pain up until that point and the fall didn't seem that bad. This could have irritated up my nerve endings and caused lingering pain and muscle tightness in the pelvic floor. Either way... I don't need to worry about that anymore because now I'm feeling great.
I still feel some pain when I use my finger to gently stretch out the area but once I use my lidocaine, I'm invincible! It also seems to be an area that is not bothered during intercourse.. maybe a spot that was missed when identifying the painful area before surgery and therefore was not removed. I try at least 3+ times a week to basically massage the area down there and really stretch out the tissue. I also practice flexing and relaxing my pelvic floor before bed each night to make sure that everything down there stays calm. It's amazing the difference I can feel since before physical therapy. I also think getting a full body massage can help too by just getting everything to relax. You might have pain points elsewhere on the body that are affecting your pelvic floor.
I still use lidocaine about 10 minutes before sex each time and and I will continue this until I feel confortable without it. I think a lot of this is mentally training yourself that sex feels good again and your body is healed.
Sorry for the terrible writing... most times I'm blogging on the go from my phone with little or no proof reading. Thanks for reading!
I'm feeling really confident that my vestibulodynia is is 98% gone!!! This is big news since I have been suffering with this for over 4 years... since I was 17! I have no idea what caused it because I experienced pain ever since my first sexual experience. It could have been birth control, it could have been excessive nerve endings, it could have been an injury... Actually after thinking about this a lot I realized there is a good chance it could have been the result of an injury I had the summer before I started having sex. I slipped and fell on my right hip and fractured a lower vertebrae. I didn't find out about this until 3 years later when I finally got an xray at the chiropractor because I didn't feel any unusual pain up until that point and the fall didn't seem that bad. This could have irritated up my nerve endings and caused lingering pain and muscle tightness in the pelvic floor. Either way... I don't need to worry about that anymore because now I'm feeling great.
I still feel some pain when I use my finger to gently stretch out the area but once I use my lidocaine, I'm invincible! It also seems to be an area that is not bothered during intercourse.. maybe a spot that was missed when identifying the painful area before surgery and therefore was not removed. I try at least 3+ times a week to basically massage the area down there and really stretch out the tissue. I also practice flexing and relaxing my pelvic floor before bed each night to make sure that everything down there stays calm. It's amazing the difference I can feel since before physical therapy. I also think getting a full body massage can help too by just getting everything to relax. You might have pain points elsewhere on the body that are affecting your pelvic floor.
I still use lidocaine about 10 minutes before sex each time and and I will continue this until I feel confortable without it. I think a lot of this is mentally training yourself that sex feels good again and your body is healed.
Sorry for the terrible writing... most times I'm blogging on the go from my phone with little or no proof reading. Thanks for reading!
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Sunday, April 15, 2012
Attempting Sex: Preparing for Intercourse After Vestibulectomy
Just another update. I encourage everyone to read my comment on the last post about addressing pain with physical therapy. So far it has really improved things along with recovering form surgery. I am excited to say that I had sex for the first time yesterday (since surgery) and it went really well. Still some pain with entry and a slight burning at times - but overall very good. I could really tell that my muscles were more relaxed. The area that I had removed with surgery was pain free! I just have some more internal burning that it getting better with PT. I am still going 2x a week and I am now using a size large dilator. The dilator hurts upon insertion but once it's in I feel nothing but mild stretching. Any friction with the dilator is somewhat painful though. I decided to get a size large so that I could be comfortable with something as large or maybe even a little larger than my boyfriend to make him seem smaller.
I used a 3% lidocaine jelly that I had my pharmacist compound for me because the one that was originally prescribed for me was causing burning. I guess it was a combination of a high percentage (5%) and the base of the lidocaine cream that was causing the burning. I put about a dab about 2x the size of a pea just inside the opening (maybe 1-2 inches inside) from the 2pm to 11pm area. Then I use my figures to gently stretch open the area before intercourse. I wait about 5 minutes and I'm good to go. Make sure to use extra lube! I've found the lidocaine jelly actually works to let things slide easier. I also recommend "surgilube" which is a gentle option that my physical therapist uses.
Comment and share your questions or experiences!
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Monday, March 26, 2012
Addressing the Muscle Pain with Vulvar Vestibulitis
So I've been going to the physical therapist 2x a week for a few weeks now and I have noticed some improvement. I am now 98% pain free with the Q-tip test! Very exciting! And now I am moving on to continue addressing the muscle pain that I've been struggling with. I never realized that muscle pain causes burning the same way that the vestibulitis does. Now that the vestibule tissue is healed and practically pain free I can really identify the location of the muscle pain and it's just inside the vestibule area. The muscles feel so tight during PT and I can tell it is going to take a while to relax them and stretch out. I try to use the dilators every other day and I am hoping to notice a difference in the next few weeks. If not, my next plan of action is botox which I have heard some women have had success with. The problem with that is you need to get injections every 4 months so I'd rather stick with PT and address the source of the problem. More updates soon! Thanks for reading!
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Thursday, February 23, 2012
6 to 8 Weeks Post Vulvar Vestibulectomy
It has now been almost 8 weeks since surgery. I had my 6 week check up about 10 days ago and everything is looking good. The 6 o clock area is still not full healed so my doctor told me to hold off on any stimulation to the area so I don't aggravate it. This means no sex... although the doctor did say oral sex was okay just nothing internal. I don't have another scheduled appointment with my obgyn so now it's just a waiting game. I've been putting some calendula oil and aloe on the area to aid in healing. I don't have any discomfort doing normal every day activities. I do still have some swelling though; I notice it more when I wear tight pants and it is kind of like a bump on the outer labia that goes away after a while. I still soak in a sitz bath maybe once a week. I have an appointment with my pelvic floor physical therapist next week so hopefully that goes well. I'm a little nervous that the surgery hasn't full fixed my issue. I haven't been able to truly test the tenderness of the area yet but I will update again soon.
Thanks for reading as always!
Thanks for reading as always!
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Wednesday, February 1, 2012
Physical Therapy for Vulvar Vestibulitis
I started physical therapy for my vulvar vestibulitis about a year ago. This was one of the first things my 3rd obgyn had recommended to me. I got a good recommendation from her about a PT that has worked with patients like me frequently. I had to buy a special sensor that goes into the vaginal opening and measures how well your pelvic muscles tighten and relax. You lay on a comfortable table (like at the doctors) and flex and relax your pelvic muscles on command (basically doing kegels). Your muscle movements are tracked on a computer monitor which you can view afterwards. Then my PT worked on massaging the pelvic muscles both interior and exterior. My muscles were clearly very tight from guarding. Because sex was so painful, those muscles would tighten even thinking about it. I also learned about several different stretches that help my muscles relax. I went 2x a week for about 6 weeks and showed great success in my measured results with the sensor. I learned how to control my pelvic floor muscles and most importantly how to relax them to reduce pain. The only downfall was that I saw no difference in the pain I experienced during intercourse. I stopped going at the beginning of last summer but I plan to go again in two more weeks when I should be 95% recovered from surgery.
Tuesday, January 31, 2012
4 weeks post surgery
I had my 2nd doctors appointment since my surgery last Friday and everything is going well so far. She said that all the stitches had dissolved and the incision had completely closed. There was still a little redness at the perineum (at the 6pm location) but this was normal considering I still have 2 weeks left until my last checkup. She did a q-tip test and everywhere seemed pain free except for the perineum. I am still doing sitz baths once every other day for another week or two.
I have noticed that if I wear tight jeans I have a litte more swelling and irritation. It's not really visible but I do notice the outer labia just gets slightly hardened because it has some fluid build up. Sitz baths are helping with this. I also started putting a little aloe on the area after each sitz baths.
I have now resumed full exercise and life is entirely back to normal. I am hoping the last bit of painful tissue heals soon.
I have noticed that if I wear tight jeans I have a litte more swelling and irritation. It's not really visible but I do notice the outer labia just gets slightly hardened because it has some fluid build up. Sitz baths are helping with this. I also started putting a little aloe on the area after each sitz baths.
I have now resumed full exercise and life is entirely back to normal. I am hoping the last bit of painful tissue heals soon.
Thursday, January 26, 2012
Sitz Baths for Post Surgery...
Sooo... it only took me about a week of doing sitz baths 3 times a day to realize that they were really uncomfortable. The cheap plastic ones are so hard and I felt like the bottoms of my thighs were getting bruised! I decided to look for alternatives and so I ended up buying a Soft Sitz.
This is an inflatable sitz bath that is really inexpensive. So much more comfortable than a traditional sitz bath! Although just to warn you it doesn't have any holes in the back to let out overflowing water and it doesn't come with a plastic bag and tube. I still find that it works well though.
If you are interested, I bought it on Amazon here.
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Wednesday, January 25, 2012
Vulvar Vestibulitis: Another Post Surgery Update
So... It's notw been around 3 weeks since my vulvar vestibulectomy surgery. I had my two week post op checkup and she said everything is looking good. She pulled at the skin 'down there' to get a better look at things which was a little painful but she said that was to be expected.
I also have still been experiencing back pain since surgery (although I think it's been getting steadily better). I called anesthesia at the hospital I went to and they said that most likely I have a bone bruise. This means that when they were putting the needle into my back for the spinal anesthesia, it must have hit the bone causing some bruising that should get better within 3 months... I was not happy about this at all. Granted it is just a little painful now, it is still quite inconvenient. I have my 2nd post op this friday and I will update again after that. Everything is back to normal for the most part. I am still doing sitz baths at least once a day and I feel the same now as I did before surgery (except for my back). I still haven't played any sports that require a lot of running or lounging as my Dr. told me to keep taking it easy in that respect. I am looking forward to my appointment and please use the comments box below to ask me any questions...
I also have still been experiencing back pain since surgery (although I think it's been getting steadily better). I called anesthesia at the hospital I went to and they said that most likely I have a bone bruise. This means that when they were putting the needle into my back for the spinal anesthesia, it must have hit the bone causing some bruising that should get better within 3 months... I was not happy about this at all. Granted it is just a little painful now, it is still quite inconvenient. I have my 2nd post op this friday and I will update again after that. Everything is back to normal for the most part. I am still doing sitz baths at least once a day and I feel the same now as I did before surgery (except for my back). I still haven't played any sports that require a lot of running or lounging as my Dr. told me to keep taking it easy in that respect. I am looking forward to my appointment and please use the comments box below to ask me any questions...
Monday, January 9, 2012
Vestibulitis: Things I've Tried and Some Great Resources
Now that I am waiting to see if I am "cured" after having a vulvar vestibulectomy, I figured I'd work backwards and share my experiences with past treatments that I have tried. Obviously nothing has really had any lasting or overly positive impact or I would not be in this position today. But, since vestibulodynia can be different for everyone, I thought some of you reading this blog might get some new ideas if you are feeling like you've hit a wall and your only option is surgery.
Subscribe to my blog to follow my story...
I will be posting about the different treatments I've tried every week until I've told you about them all. By that time hopefully I will have a success story to share with you too!
For now here are some great resources:
His and Her Health on Vulvar Vestibulectomys
This is a great forum that I recently found. It does have a lot of negative comments from people who have had vulvar vestibulectomys that didn't help them or made their condition worse but it is important to remember that some surgeries are much more invasive then others (even though they have the same name) and some of the people with this condition also have issues like prudential neuralgia or fibromyalgia that can make things much worse. Always do your research before getting surgery and as your doctor to describe the surgery to you in detail as well as talk about the experience he or she has had with this surgery in the past. It is also important to make sure you don't have an underlying condition that could be causing this issue because in that case, surgery might not be the best option.
VulvarVestibulitisRelief.com
Sign up for this site and create a case study to share your story. You can look at other case studies to get ideas for new treatment options or just read some of the articles that are posted there for more information.
MTV True Life: I Can't Have Sex
This is a video MTV did a while ago that just shows that this condition (or ones like it; ie. vaginismus) are more common than you think!
More resources and information soon!
Subscribe to my blog to follow my story...
I will be posting about the different treatments I've tried every week until I've told you about them all. By that time hopefully I will have a success story to share with you too!
For now here are some great resources:
His and Her Health on Vulvar Vestibulectomys
This is a great forum that I recently found. It does have a lot of negative comments from people who have had vulvar vestibulectomys that didn't help them or made their condition worse but it is important to remember that some surgeries are much more invasive then others (even though they have the same name) and some of the people with this condition also have issues like prudential neuralgia or fibromyalgia that can make things much worse. Always do your research before getting surgery and as your doctor to describe the surgery to you in detail as well as talk about the experience he or she has had with this surgery in the past. It is also important to make sure you don't have an underlying condition that could be causing this issue because in that case, surgery might not be the best option.
VulvarVestibulitisRelief.com
Sign up for this site and create a case study to share your story. You can look at other case studies to get ideas for new treatment options or just read some of the articles that are posted there for more information.
MTV True Life: I Can't Have Sex
This is a video MTV did a while ago that just shows that this condition (or ones like it; ie. vaginismus) are more common than you think!
More resources and information soon!
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Sunday, January 8, 2012
One Week Post Surgery: Recovery and Walking
It's been just over a week since surgery and I'm doing really well. I'm so happy my period is over and I can finally go commando (recommended by my doctor) wearing comfy sweat pants when I'm around the house. This lets the area dry out to reduce the risk of infection. I'm still doing Sitz baths three times a day and using a blow dryer on low to dry the area after soaking. I have also been using the little squirt bottle the doctor gave me to rinse the area after going to the bathroom. The last few days have been totally pain free, although I haven't really had any real pain since the beginning. I can describe it more as being uncomfortable at times (or just kind of weird feeling). I've been going for walks, driving, and doing chores around the house with no issues. I still sit on a doughnut pillow when I do sit just to avoid putting any extra stress on the area. I also am really careful when bending down or getting in and out of the car so that I don't break open the stitches. The doctor said the stitches might cause a pokey feeling when I sit but I haven't really felt that. Maybe a little in the beginning when I was sitting down but not lately at all. I have my first post operation appointment this coming friday and I can't wait to tell my doctor how easy it's been. For anyone considering getting this surgery I would definitely recommend taking a week off afterwards where you can relax and let yourself heal but after that, as long as you have a doughnut pillow, things should be relatively normal. I am definitely not ready to go skiing, or biking, or even jogging necessarily, but I feel great.
Also, please remember that there are varying types of vulvar vestibulectomy's and depending on how much tissue was removed, there would be varying levels of pain. Some people have the vestibular glands removed and some do not. My particular surgery just removed the affected tissue on the surface and no glands were involved. I had the most pain at the 6pm spot of the vaginal opening but strong pain from the 2pm to the 10pm section.
More updates soon!
Also, please remember that there are varying types of vulvar vestibulectomy's and depending on how much tissue was removed, there would be varying levels of pain. Some people have the vestibular glands removed and some do not. My particular surgery just removed the affected tissue on the surface and no glands were involved. I had the most pain at the 6pm spot of the vaginal opening but strong pain from the 2pm to the 10pm section.
More updates soon!
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Monday, January 2, 2012
Day 4 Update: an unexpected pain...
Today was day 4 since my vulvar vestibulectomy. Yesterday was probably the worst day so far... I got my period and the cramps were unbearable. I took 2 ibuprofen at 8am and 2 midol at noon. This was more pain killers than I have taken for the surgery. It was also 10 times more painful, easily. I just sat in bed all day for the most part and did 3 sitz baths throughout the day.
Today was much better. The cramps were pretty much gone I just got a headache from my hormones acting up. I felt totally normal today. I still haven't really looked at the area because I'm too scared I'll tear the stitches. I also went for a walk today; going slow and taking it easy. It was nice to get out of the house and I had absolutely no pain. I used a doughnut pillow for the car ride but walking feels almost 100% normal; sometimes I feel the stitches poking into me though.
More updates soon :) comments or questions welcome.
Today was much better. The cramps were pretty much gone I just got a headache from my hormones acting up. I felt totally normal today. I still haven't really looked at the area because I'm too scared I'll tear the stitches. I also went for a walk today; going slow and taking it easy. It was nice to get out of the house and I had absolutely no pain. I used a doughnut pillow for the car ride but walking feels almost 100% normal; sometimes I feel the stitches poking into me though.
More updates soon :) comments or questions welcome.
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Saturday, December 31, 2011
Day 2 After My Vulvar Vestibulectomy
Today is the day after my surgery and it's going well for the most part. I didn't take any pain meds until about an hour ago which wasn't for vaginal pain but rather from back pain. Originally I thought I had slept weird and that was causing some stiffness but then I realized the back ache is probably from the spinal anesthesia. I looked at my back and saw the 2 injection spots which were just dots with no apparent bruising. The back pain started this morning and has gotten worse all day. I took one ibuprofen around 5pm and that has helped some. I hope it feels better by tomorrow. I have done 2 sitz baths so far today: one this morning when I woke up at noon and one around 6pm. I didn't use the bag and tube this time - just the bowl that you sit in and I added warm water from a cup as it cooled off. I noticed some more blood spotting but not much and I have no pain or soreness in the area. I walked around the house today a little and just made sure to take it really easy. I had a bowel movement and tried my best not to push at all. The stool softener definitely helped. Now I'm back in bed just relaxing and doing some reading. Sitting down is awkward but is definitely doable with a doughnut pillow. Since it's not painful, I'm just doing my best not to stretch anything or put any pressure on the area. My legs are still a little shaky but I'm hoping that goes away after a few days too.
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Surgery Specifics (Illustration Included)
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| Vulvar Vestibulectomy Surgery Click Here for Image Source Website |
This is similar to the surgery that I had performed. The main difference for me is that the stitches are done individually rather than with one long string so that if one gets caught or pulled the rest aren't compromised. I also have dissolving stitches which don't have to be removed. I also didn't have the skin removed as high up by the urethra as in this image. I did from about 2 O'clock to 10 O'clock rather than 1 O'Clock to 11 O'clock.
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Friday, December 30, 2011
The Big Day: Vulvar Vestibulectomy
This morning I was a wreck. I woke up at 5:45am and took a shower with antibacterial soap. I also shaved "down there" because I knew it would be 6 weeks before I would get the chance again. My doctor also said that I had to keep that area dry after surgery so I though it would be easier with no hair. After my shower, I got dressed in my pajama pants and a sweatshirt and my boyfriend and I headed to the hospital. I checked in at the main desk, filled out some paperwork, and sat in the waiting room waiting to go back to pre-op. They called my name pretty quickly and brought me back into a hospital room with curtains along wall that faced an open hallway. Nurses came in and asked me my name and birthday and checked my vitals. Everything looked good and another nurse came in to take a blood sample while someone else prepared my IV. At this point, I was all clammy from my nerves getting the best of me. I hate needles and the IV was freaking my out a little. Mostly I just started asking everyone lots of questions and talking a little faster than normal. Once the nurses left I relaxed for a while until my obgyn (also my surgeon) came in to go through everything. She was cheery and reassured me that everything would go well.
Then, the anesthesiologist came in and discussed my options with me. I mentioned this in an earlier post but I will reiterate anyway.
Option 1: A spinal injection to numb me from the waste down (not an epidural which is what I originally thought). With this option I can choose to either be completely unconscious with medicine in my IV, somewhat conscious (going in and out) but not aware of anything going on and not retaining and memory of being in the OR, or mostly conscious with a little cocktail to stay relaxed.
Option 2: To be completely sedated with an intubation tube down my throat.
I went through the pros and cons of each and the doctor pretty much said that both have about equal risks. I personally didn't want to need assistance to breathe so I chose option 1 with moderate to heavy sedation. I didn't want to be completely unconscious but I didn't want to have any memory of the occurrence. I also asked for a little cocktail to prepare me for the spinal injection because I was nervous that would hurt. I had a spinal trauma a few years ago where I fractured a lower vertebrae but the anesthesiologist said this would not be a problem.
Then my obgyn came in one more time to make sure I was ready and a nice nurse came in to take me to the OR. There was two drugs put in my IV: one to make me more relaxed and comfortable and one to make sure I didn't have any acid reflux which I do get on occasion (and apparently is a big deal when being put under anesthesia). I asked when I would start to feel the meds and the nurse said by the time I got through the second set of double doors. I remember being wheeled in to the OR and asked to sit on the side so my back was in place for the injection. The next thing I know I'm waking up in the recovery room. The room looks exactly the same as my pre-op room and it all felt like a dream. I was completely alert and awake and I quickly checked to make sure I could move my legs. The curtains were open and one of the nurses in the hallway noticed I was waking up. She came over and asked how I was doing. I couldn't believe I didn't even remember the spinal injection or anything after that. I wasn't feeling drowsy or sick to my stomach. The nurse brought me some more warm blankets and a cup of apple juice with Motrin. My boyfriend came in and gave me a big kiss. I was so happy to see him and so happy it was all over. Surprisingly, I wasn't in a lot of pain and my vagina felt normal for the most part. Of course, I hadn't really tried to move at all yet. I asked how long I had been in recovery before I woke up and they said only 15 minutes. My boyfriend said I was in the OR for about an hour and a half.
The nurse had me go to the bathroom and collect some urine in a pan so that she could make sure everything looked normal. It worked out great because I really had to go to the bathroom after all the fluid that was pumped into my system. I was also given a little squirt bottle that I could use to rinse off after urinating that I can take home with me. Everything felt normal except I could not stop shivering even though i wasn't that cold. Eventually I relaxed and the shivering stopped. I put my coat on and sat in a wheelchair on top of a blow up doughnut pillow to keep the pressure off of my vagina. I was wheeled out to the car and headed home.
Overall a very good experience and I highly recommend the type of anesthesia I chose. I was told it leaves your system really quickly as opposed to other drugs. It also doesn't make you nauseous like laughing gas can. I haven't felt any side affects from it yet, although I was told to lookout for a headache that is sometimes caused by spinal injections which hasn't occurred yet.
As far as medications from here on out, I was prescribed Oxycodone for the pain but I decided I would only take it if I absolutely need it. I have never taken strong pain killers like that and I know they can cause constipation which is something I need to avoid because it can put tension on the area. Other than that I was told to take 2 ibuprofen every 4 hours and 2 extra strength tylenol every 4-6 hours as needed.
I've been home now since 1pm and I've been feeling great. I took a 2.5 hour nap and had some vegetable soup and a few cookies. I also took a Ducolax stool softener just in case. At around 5pm I did a Sitz bath which is such a pain. I didn't make the water warm enough and it cooled off so quickly. The water in the bag wasn't warm enough either. The little hose kept flipping up and squirting me in the thigh and making a mess. I ended up just using a cup and pouring warm water into the sitz bath as it cooled off. The seat is also unbelievable uncomfortable and I feel like I'm going to break it because it's a little small for my toilet seat. Someone needs to invent a better one because this is not going to be fun to do for 20 minutes 3x a day for the next week and 2x a day for the following month. I used a hairdryer on cool to dry the area afterwards and am using chlorine free organic cotton pads in my underwear to catch any blood.
At 7pm I took 2 ibuprophen and I think that is plenty to keep me comfortable. I don't think I have a particularly high pain tolerance but so far, no oxycodone is necessary. I haven't even needed the tylenol yet.
More updates soon!
Comments and questions are welcome - and if you are in New England and are looking for a doctor to perform this surgery you can send me an email at mylifewithvvs@gmail.com to get more information.
Then, the anesthesiologist came in and discussed my options with me. I mentioned this in an earlier post but I will reiterate anyway.
Option 1: A spinal injection to numb me from the waste down (not an epidural which is what I originally thought). With this option I can choose to either be completely unconscious with medicine in my IV, somewhat conscious (going in and out) but not aware of anything going on and not retaining and memory of being in the OR, or mostly conscious with a little cocktail to stay relaxed.
Option 2: To be completely sedated with an intubation tube down my throat.
I went through the pros and cons of each and the doctor pretty much said that both have about equal risks. I personally didn't want to need assistance to breathe so I chose option 1 with moderate to heavy sedation. I didn't want to be completely unconscious but I didn't want to have any memory of the occurrence. I also asked for a little cocktail to prepare me for the spinal injection because I was nervous that would hurt. I had a spinal trauma a few years ago where I fractured a lower vertebrae but the anesthesiologist said this would not be a problem.
Then my obgyn came in one more time to make sure I was ready and a nice nurse came in to take me to the OR. There was two drugs put in my IV: one to make me more relaxed and comfortable and one to make sure I didn't have any acid reflux which I do get on occasion (and apparently is a big deal when being put under anesthesia). I asked when I would start to feel the meds and the nurse said by the time I got through the second set of double doors. I remember being wheeled in to the OR and asked to sit on the side so my back was in place for the injection. The next thing I know I'm waking up in the recovery room. The room looks exactly the same as my pre-op room and it all felt like a dream. I was completely alert and awake and I quickly checked to make sure I could move my legs. The curtains were open and one of the nurses in the hallway noticed I was waking up. She came over and asked how I was doing. I couldn't believe I didn't even remember the spinal injection or anything after that. I wasn't feeling drowsy or sick to my stomach. The nurse brought me some more warm blankets and a cup of apple juice with Motrin. My boyfriend came in and gave me a big kiss. I was so happy to see him and so happy it was all over. Surprisingly, I wasn't in a lot of pain and my vagina felt normal for the most part. Of course, I hadn't really tried to move at all yet. I asked how long I had been in recovery before I woke up and they said only 15 minutes. My boyfriend said I was in the OR for about an hour and a half.
The nurse had me go to the bathroom and collect some urine in a pan so that she could make sure everything looked normal. It worked out great because I really had to go to the bathroom after all the fluid that was pumped into my system. I was also given a little squirt bottle that I could use to rinse off after urinating that I can take home with me. Everything felt normal except I could not stop shivering even though i wasn't that cold. Eventually I relaxed and the shivering stopped. I put my coat on and sat in a wheelchair on top of a blow up doughnut pillow to keep the pressure off of my vagina. I was wheeled out to the car and headed home.
Overall a very good experience and I highly recommend the type of anesthesia I chose. I was told it leaves your system really quickly as opposed to other drugs. It also doesn't make you nauseous like laughing gas can. I haven't felt any side affects from it yet, although I was told to lookout for a headache that is sometimes caused by spinal injections which hasn't occurred yet.
As far as medications from here on out, I was prescribed Oxycodone for the pain but I decided I would only take it if I absolutely need it. I have never taken strong pain killers like that and I know they can cause constipation which is something I need to avoid because it can put tension on the area. Other than that I was told to take 2 ibuprofen every 4 hours and 2 extra strength tylenol every 4-6 hours as needed.
I've been home now since 1pm and I've been feeling great. I took a 2.5 hour nap and had some vegetable soup and a few cookies. I also took a Ducolax stool softener just in case. At around 5pm I did a Sitz bath which is such a pain. I didn't make the water warm enough and it cooled off so quickly. The water in the bag wasn't warm enough either. The little hose kept flipping up and squirting me in the thigh and making a mess. I ended up just using a cup and pouring warm water into the sitz bath as it cooled off. The seat is also unbelievable uncomfortable and I feel like I'm going to break it because it's a little small for my toilet seat. Someone needs to invent a better one because this is not going to be fun to do for 20 minutes 3x a day for the next week and 2x a day for the following month. I used a hairdryer on cool to dry the area afterwards and am using chlorine free organic cotton pads in my underwear to catch any blood.
At 7pm I took 2 ibuprophen and I think that is plenty to keep me comfortable. I don't think I have a particularly high pain tolerance but so far, no oxycodone is necessary. I haven't even needed the tylenol yet.
More updates soon!
Comments and questions are welcome - and if you are in New England and are looking for a doctor to perform this surgery you can send me an email at mylifewithvvs@gmail.com to get more information.
Labels:
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Thursday, December 29, 2011
Getting ready for my Vulvar Vestibulectomy
Tomorrow is the big day. I am really nervous for the surgery itself and even more nervous that I'll do something to screw up the recovery. I haven't taken any medicine or vitamins all week and im going to clean my entire house this evening so that I can rest easy. I want to go to bed early so I'm well rested but I also want to eat t 11:30 pm because that's the last time I'll have a chance until tomorrow around 2pm. I usually get naucious when I don't eat but I'm hoping that's not the case tomorrow. My boyfriend will be at the hospital with me the entire time and I'm so glad he's there although he's only allowed to see me for 10 minutes during the 2 hours I sit in a recovery room directly after surgery. I bought a sitz bath and a big round doughnut pillow to use when I have to sit down. I'll post again tomorrow night after I get home or Saturday. Wish me luck!
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Wednesday, December 21, 2011
Pre-op appointment - part 2
How long should the surgery take?
It's scheduled to take 1 hour and 15 mins but it should take less time than that.
How will I be sedated?
I can choose between a spinal where I can either be fully awake and numbed from the waste down or slightly drugged through an IV so I don't know what's going on while I'm numb from the waste down. My second option is to have a tube in my throat and be completely under anesthesia. My doctor recommended the spinal since I am young and healthy. I can decide the morning of the surgery when I speak to the anesthesiologist. The vestibule area will be numbed with a local anesthetic regardless.
How do I prepare for surgery?
I can't eat after 11:30pm the night before and I can only drink clear liquids until 4 hours before the surgery. I have to get to the hospital 2 hours before surgery is scheduled.
How long is recovery?
It should take a full 6 weeks before any stimulus should be applied to the area. At that point I will start going to the pelvic floor physical therapist weekly and gently massaging the area to stretch the skin.
What does the recovery process involve?
The first few days will be spent in bed or just walking around the house. After that I should take it easy for about a month with no strenuous exercise. Starting the evening I get home from surgery, I need to do a sitz bath 3x daily for up to a month. This involves soaking the affected area in luke warm water (with no soap) for about 30 minutes and then using a blow dryer with cool air to dry the area.
What is the risk of a recovery setback?
50% of patients break open the stitches which delays the healing process because the area now needs to close and heal on its own. This could push the recovery period back a few weeks. Straining when going to the bathroom or too much exercise can cause this as well.
It's scheduled to take 1 hour and 15 mins but it should take less time than that.
How will I be sedated?
I can choose between a spinal where I can either be fully awake and numbed from the waste down or slightly drugged through an IV so I don't know what's going on while I'm numb from the waste down. My second option is to have a tube in my throat and be completely under anesthesia. My doctor recommended the spinal since I am young and healthy. I can decide the morning of the surgery when I speak to the anesthesiologist. The vestibule area will be numbed with a local anesthetic regardless.
How do I prepare for surgery?
I can't eat after 11:30pm the night before and I can only drink clear liquids until 4 hours before the surgery. I have to get to the hospital 2 hours before surgery is scheduled.
How long is recovery?
It should take a full 6 weeks before any stimulus should be applied to the area. At that point I will start going to the pelvic floor physical therapist weekly and gently massaging the area to stretch the skin.
What does the recovery process involve?
The first few days will be spent in bed or just walking around the house. After that I should take it easy for about a month with no strenuous exercise. Starting the evening I get home from surgery, I need to do a sitz bath 3x daily for up to a month. This involves soaking the affected area in luke warm water (with no soap) for about 30 minutes and then using a blow dryer with cool air to dry the area.
What is the risk of a recovery setback?
50% of patients break open the stitches which delays the healing process because the area now needs to close and heal on its own. This could push the recovery period back a few weeks. Straining when going to the bathroom or too much exercise can cause this as well.
Labels:
process,
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Surgery,
vestibulodynia,
vulvar vestibulitis
Pre-op appointment today - part 1
Today was my Pre-operation appointment with my obgyn to discuss all the surgery details. The surgery is called a vulvar vestibulectomy and involved removing the painful skin tissue and a little bit of the area surrounding it. My doctor used a qtip to touch the sensitive area to determine what area needed to be removed. For me, it consists of the area 2pm to 8pm of the vestibule area. The vestibular glands will not be removed. Although my obgyn has only done 5-8 of this specific surgery (with all success) she is a very highly demanded surgeon at the hospital which I am going to. She says that she considers this a minor surgery with minimal risks but that all surgeries have some level of risk regardless. In my next post (hopefully tomorrow) I'll go into detail about the surgery protocol and the estimated recovery time.
Comments and questions welcome!
Comments and questions welcome!
Labels:
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vulvar vestibulitis
Saturday, December 17, 2011
Why Me?
That is what I asked myself when I was finally diagnosed with Vulvar Vestibulitis about 3 years ago. I had been to 4 different doctors before getting a diagnosis and every since then, it has been an uphill battle (still far from being won). I found out something was wrong ‘down there’ when I had sex for the first time at age 17. The first time was painful, but it is for everyone, right? The only difference is for me, it didn’t get better; in fact it got worse as time went on once the psychological effects of associating sex with pain set in. Anyway, more about this later. For now I just want to give an introduction to my condition and share my story with other suffering from the same thing.
What I’ve Tried (in order for the most part):
- Amitriptolene
- Topical Lidocaine
- Premarin Estrogen cream
- Pelvic Floor Physical Therapy
- Topical Gabapentin
- Cotten sanitary pads
- Natural soap and shampoos
- Estrogen/Projesterone cream
- Estrogen/Testosterone cream
- Sea Berry Buckthorn Oil
- Calendula cream
- Calcium Citrate supplement
- Chiropractic
- Accupuncture (Just started)
- Surgery (scheduled for the end of December!)
- Topical Lidocaine
- Premarin Estrogen cream
- Pelvic Floor Physical Therapy
- Topical Gabapentin
- Cotten sanitary pads
- Natural soap and shampoos
- Estrogen/Projesterone cream
- Estrogen/Testosterone cream
- Sea Berry Buckthorn Oil
- Calendula cream
- Calcium Citrate supplement
- Chiropractic
- Accupuncture (Just started)
- Surgery (scheduled for the end of December!)
Hopefully I didn’t forget anything… Obviously I haven’t had much luck since I have surgery scheduled for the end of the month. Feel free to comment with any questions or suggestions. I would love your input! I will work backwards in this blog and tell my story from the beginning while keeping you updated on my current progress. If you have any specific topics you want me to write about let me know!
Labels:
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pain,
post operation,
preparation,
process,
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Surgery,
vestibulectomy,
vestibulodynia,
vulvar vestibulitis,
walking
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